mysid: (Donate Life)
[personal profile] mysid
OK, I've been putting off this post for a while because (A) Children's Hospital blocks my access to LJ (And DW) so I couldn't post "live", (B) you're probably getting sick of "My daughter is sick" posts, and (C) I had to gather my thoughts. But I couldn't avoid it forever. After a hospitalization, I always feel like I can't post anything else until I've done a recap, and eventually it gets a bit silly how long I go without posting.

The short version: A few days after the Emergency Room Visit of Hopeless Despair (TM), we went back to Children's Hospital (CHOP) for an endoscopy. It was supposed to be an outpatient visit, but the doctor discovered that my daughter's GI tract was severely irritated for most of its length. That, plus the discovery of various viruses in her bloodstream (the cultures were in from previous week's blood tests) indicated a severe viral infection. Daughter was admitted to the hospital to get IV antiviral medication. (She was already on an antiviral, but this was more targeted to the viruses she had.) We ended up staying six days.

In a way, it was kind of a kick in the pants. We knew in an abstract way that the immune suppression drugs she has to take to avoid organ rejection would impair her ability to fight off illnesses. This was the first time, but undoubtedly not the last time, that we saw exactly what that means. She caught what should have been a minor virus, was severely sick for a month, and hospitalized for a week.

She's now been out of CHOP for six days, and doing wonderfully. I think she's finally ready to go back to school tomorrow. We're a month into the school year, and she's only been there for 3 1/2 days so far. The school just started sending tutors for Homebound Instruction, so they should help her get caught up.

She's been so amazing.

(no subject)

Date: 2011-10-02 04:02 pm (UTC)
queen_ypolita: Woman in a Mucha painting (Mucha by auctrix_icons)
From: [personal profile] queen_ypolita
It's good to hear your daughter is better again, and that an actual explanation was found for why she was unwell. Hope she gets to enjoy school more fully from now on :)

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