Sorry I've not been around

[mysid]

Actually, I have been around, but merely in "lurker mode". I just couldn't wrap my head around writing anything, not even a "Hi, I'm here" post.

Since I last posted, my daughter was hospitalized again. She woke up one morning with a high fever and moaning in pain--the exact same symptoms that landed her in hospital in October. Assuming--correctly--that it was a recurrance of colangitis (an infection of the bile ducts) and pancreatitis (an inflamed pancreas), I bundled her up and took her to CHOP (Children's Hospital of Philadelphia).

We spent four days in the hospital this time. The good news is that this happened on a Friday, so she didn't miss much school. The bad news is that this happened on a Friday, so the only doctors we saw were those on call, not the ones who ususally treat her. So, we have a lot of unanswered questions that will have to wait until our follow-up appointment in a couple of weeks.

In the meantime, they sent her home on oral antibiotics and on a low-fat diet. The poor thing is a skinny as a toothpick, and she's on a low-fat diet. She's being a really good sport about the diet, and she's great about reading labels and making good choices.

Comments

[secretsolitaire.livejournal.com]

It's always good to hear from you, but I'm really sorry your daughter is going through this. *hugs for both of you*

[mysid.livejournal.com]

Thank you.

[leashy-bebes.livejournal.com]

Oh my god hon that sounds awful, your poor kid. *hugs* to you both.

[mysid.livejournal.com]

Thank you.

[broncobabe007.livejournal.com]

I'm really sorry to hear that. I will be keeping you all in my thoughts.

[mysid.livejournal.com]

Thank you.

[fantomeq.livejournal.com]

*Hugs* I can't imagine how worried you must feel right now. Your daughter sounds like such a trooper.

[mysid.livejournal.com]

Thank you. She's been on the low-fat diet for a few weeks, and today was the first day she moaned about wanting pizza (with extra cheese!) and french fries.

[fantomeq.livejournal.com]

Definitely a good sport. Some of the Vegan Gourmet cheese might work? It's pretty tasty. I can't recall how much fat tofu has, but it's got to be lower than dairy.

[mysid.livejournal.com]

We've been experimenting with various low-fat substitutes for this and that, but I haven't tried using tofu yet. I'll look up some recipes using it.

As for the pizza, she can have homemade pizza as long as I use low-fat mozzarella, AND I don't pile on extra cheese. But she can't eat pizzaria pizza because the cheese is too high in fat.

[bothropsatrox.livejournal.com]

OMG, I can't imagine how horrible and scary that is for you and your daughter. I hope she gets better soon
-Natalie